Tuesday, January 4, 2011

smile

i'm waiting for the bug guy to come. i've been given the slot between 2-4pm. this sums up how i feel about my life today.  waiting for other people. waiting for brownies to bake.  waiting for the mail to come.  accomplishing mundane tasks.  today life feels like buying socks.  spending money on things you don't care about- but need. it's also the day before the boys go back to school.  it's the big version of what we called growing up, "the sunday afternoon feeling".  that mildly depressing feeling that grows over the afternoon and evening when you know the weekend is over and work and school are about to start up again. and they are acting like it- that totally obnoxious behavior that is probably a subconscious way to help avoid the challenge of returning to real life after vacation.  tomorrow they can say 'school is way better than being around mom who yelled at me all day'.  and yes- i have been yelling, and not laughing.  doohhh. it's only january 4th! the worst part is, i'm not even trying.  but i will try to change the trying part.

to add to the crazy i've had 2 other kids over and bryn has stopped napping.  so i sent jude and his friend to the friends house down the street - so now it's just lily and zoe and bryn- playing the wii.  and while this brings some quiet to the house, i can now hear much of the conversation between zoe and lily- which makes me crazy in  a different way. in a sort of sad way.

when i have zoe alone, or with her brothers, she is just zoe- in all her glory and all her challenge- but she is zoe out of context.  zoe timeless and ageless.  when she is with lily, she has bookends.  there is comparison.  and all the progress i reported yesterday is buried beneath the glaring difference between her and her neuro-typical friend.  i see what it would be like to have a typical 11 year old- who make their own pot stickers for lunch, and can go down the street to buy something you forgot at the market, who can explain the rules of a new game, who doesn't hit someone when she loses the game, who doesn't sit and talk to her little toy dog over and over again.  who has a mature conversations with adults.

but the hardest part is not hearing them laugh and tell secrets and make memories together- not sharing in the joy that i had growing up with lily's mom.

i have a vivid imagination and an excellent ability to recall old memories and live in them for a while.   this of course gets in the way of being present.  of living in the now.  of laughing with your kids. and this escapism steps in when what's around me seems painful, or consuming, or overwhelming.  so today part of me was in florence italy sitting on the steps of an old church focusing only the fountain in the courtyard that i'm trying to draw; then paris, walking on a bridge and looking out over the river- not doing anything, then addis ababa having a uninterrupted cup of coffee and a pastry, reading my favorite book beside the pool.

ok- i'm back.  to go and try.

there is an old man in our neighborhood, john.  almost every day he walks slowly up and down the street for exercise and whenever we see him coming we go out and talk with him.  he told us a story once about when he was in the hospital last year.  he'd hurt his back, maybe broken something, and it was taking a while for him to recover.  he decided that the best thing he could do to help himself get better was to laugh.  so every morning for  a week, when he thought no one was looking or listening, he'd sit on the edge of his bed and laugh out loud for about 5 minutes.  in the beginning he'd have to force himself to think of something funny- but then it would get easier and easier.  over that week he began to get better- to move more, to get out of bed, to have less pain, to feel better.  the doctors kept commenting on how he'd had this amazing turn in his recovery- he says he just chuckled to himself- knowing the secret was enlivening his joy- finding the humor- choosing to smile.

and now i'm smiling again.

6 comments:

Unknown said...

On the neurotypical thing....boy can I relate to that! When we have church outings and I watch Shaina with her peers....its painful. She just doesn't get the jokes...she doesn't know the "secrets" to being a 14yo teenage girl. She is ULTRA logical and everything in her world SHOULD be black and white. Neurotypical girls don't operate in black and white...in fact they operate in shades of grey most of their teen years. My sister in law's 15yo girl is in this same church and often times I hear about her being invited to another girls house to spend the night yet Shaina never gets those invites. It makes me very sad...in fact as I write this I find myself getting teary eyed.

Yet here is a thought - Does she notice this? Not really. My sadness is mine....in her world everything is okay.

I just choose to look at Shaina for who she is...I choose to look at all the good stuff....and I'm sure when times like that come up for you...you choose to look at the good too.

Smiling right back at ya!

Kris Reid said...

you get it-
the thing is - she does notice- not necessarily immediately - but it creeps up on her- she gets lonely- she talks about wanting more friends or feeling left out- i wish for her she didn't care- but then sometimes i'm thankful that she does- thinking it will help her get there- who knows...
i need to keep seeing her beauty and not her boxed in.
:)

Barbara said...

I totally get the comparison thing too. Even now that Matt is 20, I find that I still get sad to see him with neuro-typical people his own age. When it's just us, like you said, he is who he is and we're fine with that, but when he's with others it's a painful reminder that he will never have that kind of social experience. However, like the poster above, it's only our sadness, and not his. He's completely content with his world.

Kris Reid said...

thanks barbara- she is most of the time content- it's true- it's always hard to pull myself from her world-a life long challenge- to let her be!

Barbara said...

Hi Kris. I just wanted to let you know that I referenced this post in a blog post I did today. I hope you don't mind. If you do, just let me know and I'll delete it.
http://boysareus.blogspot.com

Kris Reid said...

Great! thanks! have a good day
k

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