Wednesday, January 12, 2011

le bien, le mal

the good, the bad.  i'm trying.  i'm trying not to feel sorry for myself. trying to look on the bright side. so much of life is just how we break it down, how we paint it, half full, half empty.  i'm looking at zoe and the world around her- zoe and other 11 year olds.  which is almost always a big mistake.

this part is so hard for me, maybe only for me- hopefully only for me.  it's hard that she is never invited- never asked, that she's no ones number one.  that i need to instigate, plan, invite or organize.  that other girls call each other, meet each other and go for ice cream or bagels or gum.  that they have sleepovers.  that they are expanding there horizons- becoming independent- formulating themselves apart from their parents- creating their worlds together- as peers- as friends- with unity and commonality.  that they go to 'friday night skate' and begin the drama of boy meets girl.

and there's my girl- alone.  sometimes they stop by- which is good, and kind and nice and she loves.  but it's painful too.  the difference. the sideways looks between them.  the obvious difference in how they talk to her.  and her over-talking, nervous, trying, awkward, not following.  you know these kids from your own childhood- they didn't fit in- you didn't really want to be around them- because it was awkward for you too- you didn't invite them over- you were nice and polite but you were not friends.  or maybe you weren't even nice- maybe you were mean. or maybe you were one of those kids- who just didn't get it-ever, and you know how much it sucked.

i should be over it by now.  it's not new.  this is how it's always been. somehow i'm just not over it.  somehow it's actually harder now.

yesterday i was on a walk with one of my best friends.  we were talking about uganda and zoe and schooling.  i was saying our plan was to continue homeschooling her for a while- that i wasn't sure if we'd put her back in school- but that i get stressed sometimes about her future- about whether she'd want to go to college and how that would happen.  she said she wouldn't worry about that because zoe's path was so obviously going to be different- that she wasn't going to just go off to college and find a boy and get married- like i did. ouch.  that stung.  maybe it stung because maybe inside i know it's true.  maybe it stung because i had to hear it out loud from someone else- a voice of my fears.  or because it was taking away some far off hope.  but mostly it stung because true as it may be- it's just not something you can state.  as if it's a 'known', as if it doesn't deserve an acknowledgement of the fact that it totally sucks. and it's  really, really hard, and isolating, and unknown.  it stung because she has no idea how much it stings everyday- and every year- and that while her life goes on and follows it typical course- mine doesn't.  and i try hard to not feel sorry - i try hard not to wish it were different here- i try hard not to feel jealous and resentful. but sometimes i do.  and then of course i feel terribly guilty.


right now zoe is over at lily's house.  i invited her over, i called, i dropped her there. she is waiting for lily to come back with her friends from the bagel store.  she'll get to play with them. i won't have to watch. but i do have to wait- by the phone for 'the call' that things aren't going well- or hear afterward about the stickiness- about her reaction to the stress of being around kids who are 11 and who get it. or maybe it will go well- or well enough.

the peace
where is it?  i'm not sure.  it comes sometimes.  when i can remember that it is what it is.  when i can embrace her as just zoe, not zoe in relation to everyone else.  when i can 'forgive' those around me for their normal lives.  when i can not stress about how she's doing down the street with three other girls her age.  when i can let it go and when i can be OK with her not fitting in exactly.  i'm not sure if the work is in accepting things, or lowering the expectations- or if the work is in being still in the awareness that it will always be hard.  that peace and joy come in many flavors. as does love.  that lives that are lived out differently are still beautiful and meaningful and passionate.  that hope isn't hope for her to live the 'normal' path- but to blossom on her own path.  that i will hurt her by feeling sorry, and i will grow strength in her by helping her carve her own, unique way. ahh, there's the peace.

4 comments:

Unknown said...

I know EXACTLY how you feel! I have bad news for you - it really doesn't get easier. You would think we would expect it to be hard for them...that we would get used to them not getting the invites - not having a best friend. Unfortunatly, you never get used to that. I think you HAVE TO remember that her path isn't going to be like a neurotypical girls path.
I try to remember this:
Do you remember when we were in high school and all we wanted to do was be like everyone else? We didn't want to stick out. We wanted the nike's and the levis and the leg warmers (yes I'm showing my age). Then when our college years came it was all about being different and unique and not like the crowd? Sure we wanted to be accepted but ONLY for OURSELVES and not for being like the crowd.

Our girls will be the "cool" chicks in college. The ones that everyone wonders about...the ones that are mysterious. LOL I guess its all about persective. Sure its hard now and your heart breaks for them but with age comes THEIR maturity. Not only that, they have the faith we share with them and WE KNOW God will always provide and give them all they NEED.

Hang in there chickaroni! We are blessed because we don't have neorotypical girls...we have unique, mysterious, incredibly beautiful girls who are going to make a difference in God's kingdom!

Kris Reid said...

thank you for this. thank you for understanding and reminding me- we are really blessed!

Karen said...

Thank you both for reminding me:).
It's funny I was feeling the same "sorry for me" today" I go through stages were I'm optimistic and then something comes along and puts me in my place. And to tell the truth Kris, it was hearing about Jude that did it this time. When I heard how similar he and keatons stories were I went "why couldn't Keaton be like him.." now even I realize how terrible that sounds, but I couldn't help it, I want my sons life to be easier.

As I read yr entry a couple of things stood out. One is that I have many of ithe same feelings u do. it pains me that I have to force Keaton to go to birthday parties, or to other peoples houses because to him the fear of the unknown is not worth the risk, although if I force him he has a great time. When he calls me from a friends house to pick him up because they are all doing something he doesn't want to and would rather be home, my heart drops.
But as I read the thoughts of "me" other thoughts take over. Of my now eighteen year old and his youth. He did not have the social issues, but still he did not have a number of friends. I remember he would speak often of his lack of friends and that others were so much more popular. I tried to explain it was about quality of friends and not quanity, but that fell on deaf ears. But then as a jr he gained a small circle of friends and he realized he had just what he needed, people that cared for him like he cared for them. Today as. Senior he is extremely popular and could care less, because he has one or two friends that will last him a lifetime.
I too agree with "me" that as they get older they will find those that will accept them for who they are, they may not fit in the niche we wish for them, and as a mother that is hard for me, but it will be their niche. As I always say about Keaton is that he is my prickly pear; prickly on the outside, but sweet and mushy on the inside, I just want friends for him that so both sides of him and accept him the way he is.

Ps there is one thing I'm going to catch u on. Don't ever lose hope about Zoe going to college and getting married. When Keaton was diagnosed, I whined to another NLD mom that all my hopes for Keaton were dying. I wanted both my boys to go to college and that keaton would never be the pilot he wanted to be, she caught me on itn and said NLD does not limit who he will become at the time I didn't believe her, but today I see keaton doing whatever he wants, in large part because of his amazing determination(pro ably due to the NLD). At eleven, he is on his way to becoming a pilot and if he wants to go to college he will.
Thanks to both of u for bringing things back in perspective for me.

Kris Reid said...

thanks karen! that is encouraging- and always good to know others can relate- it's funny how some days are just much harder than others (for us as well as our kids)

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